Our Vision:

  • Early diagnosis and access for all individuals to an effective treatment for Fragile X Syndrome and related disorders

Mission Statement:

  • Aid individuals and families affected by Fragile X Syndrome and related disorders obtain leading edge evaluation, treatment and support at the Fragile X clinic best suited to meet their needs.

  • Drive Fragile X clinical research growth and success by supporting clinic identified research accelerator activities.

  • Help to extend the reach of the Fragile X clinics by supporting under-privileged communities in and around their surrounding areas.


Fly With Me Fund is a registered 501(c)(3) charity in compliance with the Internal Revenue Service. The fund has helped families obtain appropriate medical care for Fragile X Syndrome and has supported Fragile X related research with the purchase of diagnostic equipment.


53 Murdock Road Lynbrook
NY 11563-4219