Welcome to the Fly With Me Fund

In 2001, we welcomed our son Justin into the world. Our loving family was complete with a daughter and now our son. What we didn’t know was that this beautiful child would reveal a secret about our family that we never knew. As Justin grew, his development was delayed. It followed a different path than that of our daughter. It was clear something was wrong.

His behavior sometimes resembled autism, but not exactly. Justin always showed an interest in social interaction, but had great difficulty achieving that. Doctors struggled with a diagnosis, suggesting sensory integration dysfunction, but not autism. When Justin was 4 ½ he suffered his first seizure, a grand mal so grand the doctors were certain he would not completely recover. Fortunately, he did and we found a doctor who was able to provide a diagnosis: Fragile X Syndrome, a little-known genetic disorder.

Our Mission

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Thank you to the generous sponsors of our recent event…

and in loving memory of Aunt Sandy


Help the Fly with Me Fund raise necessary funds to help families living with Fragile X Syndrome. Thank you for making a difference in their lives. Donate!

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The fund helps families obtain appropriate medical care for Fragile X Syndrome, supports Fragile X related research projects and has purchased needed diagnostic equipment